Stand in the Gap

Posted on by .

I don’t want to sound like an asshole but I am crushing life lately: I’ve cut back on my meds, have completed a week of intermittent fasting, am decreasing my phone usage and being more present with my kids, and have started meditating every day!

Get this: last week I only broke one bowl in a fit of anger over The Kid demanding more apple sauce (and it was a shitty plastic PJ Masks one, whatevs)! I tweaked through a Sunday of no internet like an addict in need of a fix and, that evening, devoured people.com as though it was my job and the rent was due, like, then. I set the timer on my phone for my shavasana pose on my bed and worry my way through it (fun side note: did you know that shavasana means corpse? You’d think I’d be good at that! #tired)! Being present with my kids means laughing at Captain Underpants jokes in front of the TV at the same time! Long blacks are not as good as cappuccinos! AND I’M HUNGRY!!!

And the meds…

Last week I was embracing the return of tears to my life. This week, I’m battling the eruption of anxiety. There is somewhere between overmedicated and undermedicated and I’m in the distance between them right now, using CBT techniques to tell myself that it is very unlikely that Little Brother and I will be hit by a bus while standing a metre back from this kerb (and so help me God if you correct me, that is the way AUSTRALIANS SPELL IT). The stimuli that Lexapro dimmed for me–alongside the intensity of feelings that it also dimmed–now feel more like assaults I have to manage if I want to stay at this dosage, in this space between 10 and 20 mg, between then and now. The difference this time around the 10 mg block is that I recognise the assaults for what they are. I am better equipped. I am more aware.

But they’re still assaults.

Last week The Husband pulled his vagina, sorry his NECK, and as he hobbled around with a heating pad encircling him like a scarf, I congratulated myself on taking him to the doctor and being decent to him and not killing him while considering, in my own twisty mind, the ways I’m hobbled, the ways we all are, even Bran the Broken (WTF with that ending tho), legs and necks and minds struggling to function properly as we inhabit the gap between how things are and how they should be.

“He was so popular today,” Little Brother’s preschool teacher told me one afternoon last week, and my mind jumped ahead to the potential angst of his teenage years, this one with the people-pleasing trait that I’ve passed on, to the blessing and curse that social awareness and proficiency can be. And then his brother, revealing his innocence when he recounts a playground drama at school and asks me: “Why are people mean sometimes?” The gap between between popularity and insecurity, between innocence and being hurt, not being very big. The gap between their insightful questions and my insufficient answers feeling like an ocean. I am not enough.

And I don’t have to be. Because there are the gap-fillers that show up, the agents of grace that can supersede even meds and food: the friends who show up for TK when his therapist calls in sick at the last minute, rubbing his back and enfolding him in their circle. There is LB asking from the backseat: “Are you sure there’s enough space for God and Jesus in my heart?” and I, trembling under anxiety and the responsibility of being in the front seat–maybe even because of that–answering, “Ya damn right there is.” There is LB singing his favourite lines from the song I taught him and casting me a knowing grin. There is the hand cream that TK bought from his school’s Mother’s Day stall for me, that is pomegranate-scented but somehow smells like Christmas in this Southern-Hemisphere winter without one. All of these gaps between what I am and what I’m not, between faith and certainty, between now and not yet, somehow always filling.

I lace up my shoes for my new routine, this exit from the house in the space between my waking and everyone else’s. I am not crushing life, but I am showing up for it, and somehow this current gap, between darkness and sunrise, it feels like home.

Everything is Now

Posted on by .

I’m approaching my four-year anniversary on antidepressants (Lexapro, if you’re nasty) this October and recently felt motivated to make a change. I sat across from a dear friend I hadn’t seen in too long a couple of weeks ago and we talked about this drug that came at a time when we both needed it: in the throes of postpartum depression, in a valley where we both had lost our sense of joy and felt like searching furiously and trying harder wouldn’t recover it. She asked for help first and guided the way for me to, and as the pill kicked in I felt a space: a space between me and the anxiety, between me and the sadness that hadn’t been there before, or else had just been filled with turbulence and anger and reaction, and was slowly (not completely, but at least partially) replaced by glorious empty space, into which moved an opportunity for me to look across and see myself as separate from the anxiety and sadness. A chance to know that they are not me and do not claim me. It didn’t fix everything, but it helped.

And when we moved to Australia over two years ago, and the walls began crashing in again and I felt, again, like I couldn’t breathe properly if at all, I sat in my doctor’s office and he told me that maybe it wasn’t supposed to be this hard. That maybe it didn’t have to be. So he increased my dosage, and that helped too.

That was two years and twelve pounds ago, and lately, as my clothes have gotten tighter and the space has returned and provided tools for my belt (just kidding, I don’t wear belts, my clothes are snug enough already), I’ve wondered if it might be time for a reassessment.

Self-guided, of course, because you can take the girl out of the controlling, but…anyway, I just wanted to try it. So last week I began halving pills. Back to my original dosage. And almost immediately I noticed an effect: tears.

(Full disclosure: when typing that, I accidentally spelled teats first. Sadly, that was not accurate.)

My tears came closer to the surface and past it. I was more easily affected, and this felt…wonderful. My friend had experienced it as well, once again lighting the path for me. I let the thickened throat and watery eyes take over at a champagne lunch for a foundation telling women’s stories of infertility and depression; I let it erupt at the ballet the next day; during afternoons with my kids when their observations humbled and wrecked me. During one unexpected moment involving the Hound and Arya.

There are times when the feelings are all too much. And there are times when they are the perfect salve, the most welcome old friend coming back.

Now I seem to be in the latter times.

Now is when the days are shorter and the evening cold creeps–or blasts, depending on the day–in, when parenting is hard but also beautiful, when we are all cutting back on our screens, when I’m cooking new things and my running mojo has returned. There may be a new Now down the road when I need the full dosage again or I have to (God forbid) return to hiking for exercise or I just don’t have the energy to be “present” enough to relegate the iPads to the shelf.

And we are waiting, always waiting, to know what our local package is, or where we’ll be in two years, or whether we need to get serious about looking at secondary education in Australia or not. Somehow along the way I had fooled myself into thinking there would ever be a time when we weren’t waiting, though. When we would be settled: into a final house, final city, final plan, where everything around us would be both Now and Future. Where I could breathe in that space.

That’s not the space, but I am breathing. Through tears, and laughter, through the way Little Brother calls us “guys” and the dearness and immediacy of it makes me stop clamouring to look ahead and grounds me in the beautiful and hard Now. Where the way The Kid’s excitement to greet me in the morning shows up in his grin and knowing look. Where I’m halving pills and turning on the heat and waking up in the dark to run and we’re possibly gearing up to sell our first home a continent away.

None of this, really, being in the plan, but in the Present.

Wilder

Posted on by .

Yesterday, we had to stop the car to let a bush turkey cross the road.

Things like this are part and parcel of our life in Australia; oddities that are no longer oddities; the day-to-day around here. All the elements of our life here–the birds that sound like small children crying, the spider webs stretching across street blocks, the seagull poo dotting the sidewalks–my brain has moved them from Strange to Normal territory; my ears block them out, my hands automatically brush them away, my steps avoid them.

What once used to be my bedtime soundtrack–the horns and sirens and noise of New York City–had to, a couple of weeks ago, be blocked out by earplugs after my valiant, sleepless effort to prove I hadn’t changed that much. Then came the manicured and predictable paths of suburbia, with even the hidden corners feeling polished: my walk with The Niece down hills and over creeks with rocks arranged just so (naturally, we had to move them, via splashy-tossed rearrangements).

I didn’t know how much I missed–no, need–the bigger water until I returned to it. Now it glimmers outside my window, and one thought, above the stretching of love across the world, wins out: it’s good to be home.

It’s good to be back to the bridge that raises and lowers outside our window every day, The Kid alerting me to its activity. It’s good to be back to the smell of salt in the air. It’s good to be back to two bodies pressed against mine on the couch. It’s good to be back to dropping temperatures and shorter days.

It’s not quite as good to be back to TK running into the bathroom, asking what kind of poo I’m doing: “Is it diarrhoea?” To the privacy of solo plane rides shattered by Little Brother yelling from the next room: “Hey James, let’s go put our penises on something!” To “HEY!” yelled in my general direction when a need remains unmet for longer than three seconds.

“Why are you so angry?” The Husband asked the other night after a simple question was met with a guttural sigh and frenzied tone from me. I was jet-lagged, sure, but it was more. It was culture shock: my solo self clattering back into my decidedly accompanied self. “Reentry is…hard,” I answered.

And yet it often seems to be what my life is made of: reentry into the South after five years in New York. Reentry into America after years of Australia. Reentry into New York after a year away from its streets. Reentry into Atlanta and family and friendships after months of long-distance. Reentry into reality after holiday. The landings are often delayed, and rarely perfectly smooth. There are adjustments that need to be made, laundry to be done, Game of Thrones episodes to be caught up on.

But there are also reports: of Little Brother regaling his friends and teachers with song reprises–“Sunflower” and “Shotgun” are current favourites. Stay tuned, You Tube. There is TK’s assessment that term two is “going so great so far!” There are familiar faces and terrain. In the midst of reentry and what feels like a growing unpredictability about life the older we get (waiting on our local package, wondering if we should plan for American or Australian high schools, not exactly having a clear idea of where we’ll be past a year or so down the road…) there is…home. Right now.

“Is it the future?” TK asked me on the way to school this morning, and any sense I have of time grows skewed with age (see above, and also a recent viewing of Avengers: Endgame). “It’s the present,” I told him. “What’s the present?” he asked, and I thought for a minute. “Now is the present,” I said. “So…it’s always the present?”

He looked like me after the Endgame credits rolled. As in, “I have…questions.”

The Husband and I, two consummate planners, are living one foot in front of the other (much like my hike from a couple months ago, but with less visible blistering). Manna and mystery are our diet, along with lots of carbs. I long for the order of a bullet-pointed list, the assurance of a set-in-stone calendar…even as I’m pulled, and even brought to strange new life by, waves of unpredictability and seasons of change.

There’s that classical music station I love, the notes falling in a textbook rhythm most hours, but in the middle of the day they change tunes. And it sounds like what is happening with us, this life we’re called to that defies expectations and what we planned for it, the neurotypical and the not-so-typical, the manicured lawns and the bush turkeys, and a grace that seems to be making jazz out of my life: rhythm giving way to wandering, notes lingering into the future that becomes the present, the blue of the sea and the sky sometimes indistinguishable, with the biggest surprise being…that I like it.

On the Other Side

Posted on by .

I’ve been asked to put it into words over dinner tables, across seats at a conference, at brunch, while I’m holding in a bucket of diarrhea: what is it like living across the world? And what’s it like coming back?

It’s impossible to put into words, is what it is. So that’s exactly what I’m going to try to do.

It is this: that, just as you get adjusted to one life in one time zone with one routine and one set of people, you are jerked–by your own choosing, or eventual assent (see: me two and a half years ago)–into another hemisphere, another day, another weather pattern, another culture, another set of people. And, once you are adjusted to that one, toggling back and forth between them–either bodily or mentally–for the rest of your natural life.

It is this: that you arrive in the city where you’ve lived before, where you’ve spoken before, where you’ve gotten sick before, and you do it all again. To prove, yet again, that you’re not the one in charge but that the one who is? Is real, and unchanging, and difficult, and good.

It is this: knowing that your kids are asleep while you’re awake, and awake while you’re asleep, and that other hands are leading them and dressing them and picking them up. It is letting these hands do that in their own way. It is feeling relief and guilt and yearning at not being those hands, and counting down the minutes–but also not–until you are.

It is replacing one duo of kids with another, girls this time, the big one who leads you down trails and serves you the ball and makes you stop to feel the cool creek water. Who makes you slow down and (NO!) say hello to people on the street. Who melds into you at bedtime and past it so you can read together on your last night here. Who demands from you all that you thought you were having a break from, thereby reminding you that hearts, they are always on. It is the little one who, last visit, didn’t know who you are and now gets your name mostly right, who runs to you know and lets you dance with her. It is wondering if this many goodbyes can be okay for one’s health.

It is getting a text from your son’s therapist: a photo of him at the starting block for his school carnival’s 200-metre race. This is the first year he’s run it. Coincidence? It is hearing that, when The Husband told him how proud we are, he, The Kid, said, “But I wasn’t the fastest.” It is hearing that his Little Brother responded, “That’s okay, James! Remember from Muppet Babies: Every champion loses a lot before winning.” It is feeling pride and joy and love stretch over ten thousand miles, unbreakable.

It is running into, and meeting up with, friends from past lives and present: on the street, at the airport, over dinner, across a bowl of chips, at Chick-Fil-A with glowing toddlers, with biscuits at a halfway point between the two of you. (It is biscuits meaning two different things.) It is picking up where you left off, over and over.

It is saying “I love you” more than you ever thought possible, or comfortable, and if you hadn’t ever left? You wouldn’t be saying it as much.

It is beauty, and home, everywhere.

LB’s favourite song used to be “The Other Side” from The Greatest Showman. His best friend O’s used to be Imagine Dragons’ “Believer.” Now, on Thursdays, LB asks for Imagine Dragons and O, when it’s his turn, shouts “The Other Side!” from the backseat.

Things switch up sometimes.

Midday meetings that become spiritual touchstones. Three-hour movies that shape a day…or longer. Embraces, moments spent on the couch, feet pounding old terrain, back and forth. It is everything.

And today, it is heading west. Going home. Again.

Irregular Me

Posted on by .

A couple of weeks ago I picked The Kid up early from school for his Monday speech therapy appointment. I told him, as we drove, about a book I had gotten him and his brother about kids who are different and do cool things: profiles of men and women who started out a bit unusual and went on to change the world.

From the backseat, he pondered this briefly then asked something I didn’t understand–hence, the speech therapy–and, as is often the case when I need him to repeat something, he grew frustrated. Finally I comprehended him: “Are the people in the book autistic?” he was asking.

I inhaled sharply. It was the first time he’s used the A-word, as we usually call it his Apple Brain, a phrase that seems more personalised and descriptive of who he is and feels less like a label. He went on to ask several more questions about autism, including whether individual members of our family are autistic “I wish my brother was,” he mused). I asked what made him wonder about all this: whether someone had mentioned autism lately outside of my talk to his class, and he responded that it was that talk that led to the questions. Later that day, he mentioned casually, “I’m an irregular kid.”

Cue the heartbreak. I had told him earlier that I was glad he and Little Brother are different because they can teach each other and us their own things. But this irregular talk–I didn’t like the sound of that, and I wondered if someone had called him that. No one had, he replied–it was just his logic making sense of his differences. He attached no negativity to the word, it was just how he saw it in the greater scheme of things. Dare I say he even sounded a bit proud of the distinction?

I of course analysed this…well, up to and past this very moment of writing it. But no matter how many ways I look at it, he seemed okay with it. And for all my fretting and searching, there’s a growing part of me that is too.

Because I am irregular. I write this from a hotel room in New York City, cranes churning and buses honking outside my window, a place I sought out because I didn’t fit in any longer where I was. Here, I found friends and The Husband and grace. I grew up. I found home, so much so that the streets are imprinted in my memory and on my heart: odd numbers west, even east. The layout of this island is a map of me, ten years ago and somehow forever, a barrage of memories pummelling me as I ran along the East River this morning, as I picked up a bagel and coffee from my corner shop, as I stood before my old apartment building and the fire escape where I thought and wrote, as I walked past TH’s old building where he proposed on the rooftop. It still fits and it doesn’t, restaurant fronts changing over and my old gym disappeared, so much changed and unchanged, like me.

I would never have come here if I had been regular.

If I had been regular, I never would have had the precedent set in my mind and soul that home can be a thousand miles away, to set me free to let it become ten thousand. I never would have flown across oceans and hemispheres or met the people I now call friends. I, my children, never would have had the stamps on our passports, would never have seen kangaroos up close, would never have descended over the mountains of the south island of New Zealand, would never have stood on an island off Tasmania with the bay on one side and the ocean on the other. There’s so much we never would have seen, felt, done.

And in a text from TH as I was dragging my jet-lagged ass to bed last night, scenes that I’m missing across the world, from the backseat once again:
LB: “James, ‘Sit Still Look Pretty’ is a girls’ song.”
TK: “Well sometimes boys like girls songs.”

YES. My irregular kids, schooling each other on the way HOME from McDonald’s, sharpening and teaching each other as I, ten thousand miles away yet always right with them, split my heart between homes and time zones and all the irregularities of my own path. Just the way it should be.

It Needs the Moonlight Too

Posted on by .

Last Friday, the last day of Year Two, Term One, The Kid emerged from his classroom with a huge grin and some extra baggage: a bean plant he had been growing throughout the term in his science class. The other kids popped out with their own plants, in various stages of growth. A friend’s daughter lamented that her bean, for its part, had basically not done shit over the last few weeks: “Why is mine still beneath the dirt?! Why didn’t it GROW???

Naturally, I was thrilled that TK’s little green stalk had made something of itself; that’s one less question I have to answer. It’s the small things, right? But not every growth experience yields similar results. Not every pathway through the muck leads to such visible length and light.

We arrived home and found a sunny place where the plant could continue living, and the next morning TK noticed that the bean had appeared to grow overnight. “It needs the moonlight too,” he concluded, his typical observational simplicity covering the depths beneath it; profundity masked by brevity.

I’m going “on holiday,” as they say here, in a week’s time, flying solo across the Pacific Ocean and most of the continental US to arrive in New York, where I’ll meet The Sis and give a talk, and a couple days after that we’ll hop down to Atlanta for me to briefly reunite with family, friends, and Super Target. The trip fills me with anticipation and anxiety, unsurprisingly: I can’t remember the last time I ventured through an airport without The Husband trustily holding my passport; nor can I remember the last time I sat inside a plane without a small hand tugging at me to go to the bathroom. I’ll be savouring every moment while counting them down until I see my three men’s faces again. It will be wonderful and tough; sunlight and moonlight.

One of my favourite (read: most outrage-inducing) parts of this journey is how people have stepped up to ask how TH will manage. I’m not talking about friends who offer to have the kids for a play or to check in; I’m talking about the acquaintances who ask whether they should bring meals by as if someone has DIED, or the ones who question if perhaps TH needs some live-in help? Like a child carer or cook or maid? Turns out that in 2019, some are still aghast at the thought of a man taking care of his own children solo for a spell. I love TH and will acknowledge at every turn the incredible husband and father he is (unless that turn occurs at 6 pm on a weekday and he hasn’t arrived home from work yet…), but do I think he should be immortalised as some kind of GD folk hero because he steps up to give me a mental break and mind his own offspring? I most decidedly DO NOT.

Props to TH for changing hundreds of diapers compared to my own dad’s ONE (love ya, Dad) and for making his own sandwiches, but let’s not contact the Nobel committee just yet when sisters have been doing it for themselves for centuries without an effing Meal Train delivery schedule, JUST SAYING.

That said (and now with me searching for a place to live for the next week), I’m interested to see what shape everyone will be in upon my return. The boys, for their part, will miss me while having a wrestling, physical, nugget-filled good time with the Fun Parent. TH will miss me too, but likely will enjoy leaving his half-empty water bottles wherever he damn well pleases and allowing cabinets and drawers to remain open whenever he wants.

Yin and yang. Tit and tat. When one side of the equation is missing, the whole thing gets lopsided and starts to crumble. When TH was away a few months ago, everything was in its place around our place, but we were woefully incomplete and–even though the laundry didn’t pile up–we wouldn’t have lasted much longer without him. I need the calm to my uptightness, the blue to my red, the “it’s fine” to my “EVERYTHING IS FALLING APART.” I need the kid whose favourite word is penis and the one whose favourite is why; the one who demands I watch him as he watches his iPad and the one who pushes me away (“But I still love you!”). I need a TK and an LB, and the world does too: TK’s friends need their calm port in a storm and LB’s need a PJ Masks-enthused dance partner. And they need each other: LB clinging to TK’s neck and begging him for a hug (“Brothers of love ALWAYS HUG!”); TK teaching LB about manual versus automatic transmission along with all the other nuances that people can overlook while dancing to PJ Masks.

We all need plants that grow slowly, beneath the soil, and those that emerge through it early, when we’re barely ready.

I returned from a run this morning and, keyless, rang our doorbell. Cue the pitter patter of small yet growing feet, the door handle jangling, and LB’s face appearing through the screen. “Mom, I need to tell you something!” was his greeting, before exclaiming frustratedly, “How do I get this OPEN?” I heard TH patiently (what’s that, this patience thing you speak of?) prod TK to help his brother, and seconds later, TK’s face appeared and the door was quickly opened. As I stepped forward, they both grinned their particular grins at me, leading me inside to my place, where TH waited. To home.

Let It Out

Posted on by .

I haven’t been honest lately.

I haven’t been totally honest, at least, which is the same as being dishonest. I haven’t been honest here, which means I haven’t been honest with myself. When I write here, I try to let it all out: be open about the struggles I face, we all face, and describe them in their ugly and beautiful totality. This is therapeutic for me, because it’s real. Because it’s a process, getting to the end and pressing “Post,” and usually by that point I’m feeling a sense of relief at the journey having taken place: events and thoughts transcribed, grace observed.

The appeal of tying things up neatly is irresistible. Plus, no one wants to be a Debbie Downer. People talk about Debbie Downers (so I have been informed). And my penchant for order always pushes me in the direction of a tidy, if not happy, ending each week.

It’s just that that’s not always possible. More importantly, it’s not always true.

I’ve been overwhelmed by anxiety lately. And through conversations I’ve had and stories I’ve beheld, I know I’m not the only one. So consider this a pit stop, a bench to sit on together, if you’re anything like me: short of breath, an inch from losing your shit, taking it out on your partner and/or kids, full of regret, battling an eyelid twitch, suffering from insomnia, having the shakes, feeling…crazy.

And if that’s not you, chances are it’s someone you know and love. Life is unrelenting, in all the ways.

I developed my eyelid twitch (not to be confused with my actual eyeball twitch, #blessed) when I was living in New York and I had to quit a dicey job. Along with the twitch came some fun heart palpitations that sent me to the doctor, who in turn sent me out with an external heart monitor. Good times. After I shed myself of the job and its issues, the twitch and palpitations disappeared. But lately, my eyelid has gone haywire again. The other day, I was driving the boys to their respective schools while stuck in traffic. They were talking over each other in the backseat. I felt the old familiar feeling returning: panic, breathlessness, a need to escape what felt like drowning. I wanted to scream.

A couple of nights later, Little Brother fell asleep quickly but The Kid did…not. The Husband was out and I was all set for an hour or so of a TV movie with a glass of red. TK would not acquiesce to this plan. He was almost asleep and I got up to go when he awoke, asking where I was going.

I am not nice in moments like these. I very actively, in fact, end up hating myself for moments like these: my terse replies and emotional shutdown, my impatience and irritability with life not going according to my preordained plan. I brought TK upstairs with me and turned on Failure to Launch. It was not as good as I remembered it being in a theatre in New York with girlfriends. I turned it off and we went back downstairs. My teeth were gritted the whole time. My thoughts were dark. My skin pricked with rage and stress.

Last week, we had our Parent-Teacher meeting at TK’s school. His therapist had given me a heads-up of some of the things that might be discussed, which was a gift. Without that gift, I might have gone in expecting either the pleased surprise of his kindy teacher or the easily-discarded dumpster fire of last year. What we got was neither. What we got was a lot of truth.

That’s always the best. And the worst.

His teacher this year expects more of him, which means more is expected of us, which means there is no autopilot for parenting (how could I have forgotten?? But I did). We have been lulled by a series of successes into a resting-on-laurels state, an enjoyment of all that he’s proven himself capable of: dancing on stage, improving his handwriting, doing maths, coding like a mofo. But what used to be our main concern–his social interactions and behaviour–has both improved, and taken a backseat to the very real needs of academic and independence growth.

He learns differently, and we have to help him, and this is both hard and wonderful. I feel both suited for it and woefully inept. To put it another way: I was a star speller growing up, winning the state spelling bee in sixth grade. Spelling is not TK’s strong suit. How do I parent from a place so different to his, in this one example?

Well, last week I parented him to a nine out of ten on his spelling test, his highest score this year. This is not a brag, though, for if you had seen the carnage and screaming (his…mine) it took to get there, well…

Beauty on the other side of difficulty? I’m counting on it.

We’ve had an amazing couple of years, and now shit is getting real. Kids are getting older and new demands arise. How do we help them become who they’re meant to be? The pressure is overwhelming.

Hello, eye twitch.

TH, who is kinder than I deserve, took the boys off me for awhile this weekend and I finished my conference talk. I breathed. I walked, and ran. I used my new ALDI back massager, which is changing my life. I finished binging The OA.

But the best moment came once we were all together again, after a Sunday lunch, when we walked down to the beachfront and the boys settled into the sand. TH grabbed each of us a drink and we sat there, shaded in the afternoon sun, and we just were. Tears and laughter, anxiety and peace, all of it coexisting. Which is not to wrap things up neatly, but more to offer–to myself and anyone else who’d like to join–a port in the storm. Even when there isn’t one, overtly–some days the sun is shining and I’m wearing makeup and decent clothes–but life and weather are unrelenting. And this is grace, and love, this constant acceptance and fighting and figuring it out and messing it up, this grappling, together–facing the waves that both soothe and buffet us and remake the shoreline where we sit, day after day, nothing and everything changing all the time.

Life on Another Note

Posted on by .

We live down a hill, two blocks essentially, from The Kid’s school, and something magical happens a couple of times a day when I’m at home: the sound of the bell signaling break times floats down that hill to me, followed shortly after by the sound of kids playing and yelling, their glee filling the air. I imagine TK’s voice as part of that pack, floating down to me with all the others, even though he’s not typically one of the louder ones in a group. But there was a time when he didn’t use his voice at all, and we’re not there anymore. So for me, he’s in that sound. In that music.

Last week I spoke to his class about apple brains and autism, and I was amazed at how attentive they were; how their rapt expressions both buoyed me and gently pushed aside my anxiousness, unlocking a path for vulnerability. For his part, TK, sitting at the front of the group on the floor along with the rest while I perched on a seat, stayed close: he kept grinning up at me and reaching for my hand, occasionally interjecting with his own comments. The kids saw him as a baby with a tilted head; they saw him in his halo after his surgery; they saw our family as it is now, four-sided and complete. They asked me questions and laughed at my jokes. They were the best audience I could have imagined, because they really listened to the story of TK. And to think, just five minutes before I had been in the car sweating through every possible pore, trying to talk myself off an anxiety ledge.

Beauty, it seems, is most often on the other side of what seems hardest.

Also last week, the day after the class talk, I headed to the school for Grandparents’ Day because, although I am not a grandparent, I get to stand in for the ones who do not live down the street or even in the same hemisphere. The year two students perform a song on their recorders every year–it’s their introduction to instruments, this plastic noisemaker, and in case you don’t remember your own version of “Hot Cross Buns” from primary school, allow me to remind you that it’s not exactly symphonic. Along with the other parents, I laughed gently and took the obligatory video (to be used years from now for bribery purposes, and certainly not to help myself fall asleep). James’s therapist had told me that he wasn’t getting the notes quite right, but that this wasn’t unusual among the group and he was front and centre anyway, which was really what I was there for. Again, as the day before: a grinning kid, looking straight at me.

The next day, the weight of the week lifting as we headed toward the weekend, I drove the boys toward their respective days and told them–something that would rarely happen on a weighted-down Monday–a few of the things I love about each of them. True to form, they barely let me name one quality before they were asking questions, wanting more. Little Brother in particular appreciated my recognition of his sense of humour and told a couple of Fozzie Bear-inspired jokes in reward for my services. His unblinking acceptance of his given and perceived role in the world, in our family, is one of the most beautiful things about our life: when we named him William (“Protector”), we had no idea all the ways that would play out, including but not limited to his recent favourite game, which involves having either me or The Husband throw a basket ball toward where TK sits in his toy car, “driving” in front of the garage, while he (LB) runs toward the ball to keep it from hitting TK. (“Let’s play ‘I Protect James,'”, he says, making me wonder if his consciousness operates on deeper levels than I can imagine.)

One of the things that stood out to a few of the kids in TK’s class was when I told them about how he often experiences sounds and light differently than many of us. It was a concrete piece of information to which they could relate, and I was grateful for how it’s been explained to me by TK–fluorescent lights, for example, that seem to pulsate to him instead of shining continuously. It’s like he’s reaching across an invisible membrane when he’s able to tell me things like this, and I can only hope that I feel the same to him, a hand reaching across to where he is, explaining my version of the world. But so often he’s the one who comes up with his own, better answers, like recently when a playground encounter involved a student bullying TK’s friend, leaving her crying. “Why did he do that?” TK asked me later, unraveled and upset as he always is when he witnesses meanness, and concerned as he always is for people who are hurting. I told him that maybe the kid was having a bad day, or that he was unhappy, which didn’t make it right for him to be mean. TK quieted and appeared thoughtful for a moment. “Or maybe he was in Demo Mode,” he offered instead.

(In Toy Story 3, while the toys are all misplaced at a day care, Buzz Lightyear is switched into Demo Mode by a bully of a toy bear, which means that Buzz’s memory is erased, which means he forgets his friends and is unkind to them.)

Just to flesh that out: my boy, whose innocence often astounds me, reasoned that another kid was being mean because of a technical glitch. When people speak of autism as a disability, I have to remember that they don’t know my son, don’t know his depthless reserves of kindness and empathy. Disabled my ass.

On Friday we met some friends at a local beach and the kids fed the seagulls while the moms drank Prosecco, and before we all dispersed to our own homes, the pack of children were naked in the ocean. Their laughter traveled across the water and sand to us, like bells down a hillside, sounds that turn into notes that become music.

Look Me in the Eye

Posted on by .

Among the many traits The Kid and I have in common is a reticence for eye contact, though each of us has our own reasons. Mine: a condition called congenital nystagmus that renders my eyeballs shaking marbles in my head and often leads people to ask me “why [I’m] doing that weird thing with [my] eyes.” His: a propensity to be overwhelmed by sensory input, including but not limited to others’ gazes.

Actually, maybe we have that reason in common as well.

All my life I’ve resisted the socially-required act of holding eye contact. I’ve looked everywhere but at the person to whom I’m speaking during a conversation, often leading that person to turn and check behind them to see what I’m looking at. Sometimes I forget that my eyes do this freaky thing and then, when someone looks at me a bit closely, I remember and start swimming in self-consciousness.

“Eye contact” is an actual goal in TK’s therapy program, a heavily-emphasised action that he is constantly encouraged about. “Oops, where are your lovely eyes?” he’ll be asked. “Where am I, James?” I imagine him rolling those lovely eyes when no one is looking, muttering “You don’t know my life” under his breath.

I know we each also have non-diagnosed reasons for shying away from being stared down: as introverts, we can get worn down by contact with others; we like to protect ourselves and our space. So much so that having someone look at us can feel like our souls are being peered into without our permission.

Have I mentioned that we’re both sensitive?

I’m writing this on a Tuesday, and this afternoon I’ll be going to TK’s class to continue what is becoming a tradition since last year’s inaugural event: my speaking to his class about autism, or his “apple brain,” as is our preferred nomenclature for the way his mind and body work. I’ll show photos and a video and tell his story and answer questions. It’s something I’m privileged to do, and nervous about. I’m opening a window on both of us, inviting people to peer inside. It’s unnerving, and wonderful. Hard, and easy. But my mind was made up when my friend told me that her son still talks about the wonder of “James’s apple brain” a year after the last talk.

I never chose to be an advocate. When I was in my residency, I wrote a paper about autism and remember thinking how interesting and foreign it was. The autism I wrote about–the specific behaviours, the dental effects–does not describe my son in the least. Maybe that was why I had such a hard time accepting his diagnosis when it was handed to us four years ago: it didn’t fit into the parameters I had sectioned off when I was studying it as a foreign entity back in school.

Because now, the spectrum is a real and living thing. It limits and it gifts; yet it still doesn’t define. It is a part and not the whole. The whole is The Kid, and this is the story I tell: of all he’s been through, of what he likes and dislikes, excels at and needs help with. Of how he has kindness in spades (and of how I am seriously considering getting a bumper sticker that reads, “My kid on the spectrum is more empathetic than your kid who’s not”). Of how he’s a big brother and can’t stand vegetables. Of how he is you, and me.

I’ve had to lay down so much armour I carried into adulthood, and parenthood, so that people can really see me, and see us. I’ve had to showcase scars because they are such an integral part of our story. And, so far, I’ve typically been met with love and understanding (to my face). Still, it’s uncomfortable. It means I get asked about my eyes, or about the red ink on my and TK’s hands–the love buttons we share to send hugs when we’re apart. It means I get to document how nothing is as I expected it to be, and how this has both broken and blessedly remade me, sending the painfully shy and fearful girl toward microphones, into classrooms, telling the story she didn’t choose but the one that’s being written for her, for hers–the hardest and best kind of story there is.

There’s No “I” in Team

Posted on by .

Last Friday I walked 60 kilometres (more, actually; the f-ers who mapped out the course went OVER the 60k mark) in twelve-and-a-half hours, but if it had been just me doing the walking, I’d likely still be somewhere along that course, probably sleeping under a bridge or drinking at a bar.

I did all the prep work necessary: regular hikes of increasing distances, acquiring blisters that turned into hard callouses; learning the route; carb loading; getting good sleep; even abstaining from alcohol the week before. The weather cooperated too: there was rain forecasted that was replaced by wind and clouds, that Friday the lone dry day surrounded by thunderstorms the rest of the week.

But still, on trek day, my legs felt like lead. My team seemed to be practically jogging even though we were travelling at our usual pace. I wanted to quit so badly. I could imagine myself just lying down–on the beach or in the middle of the street, I wasn’t picky–and surrounding to the aches and pains. Just letting go.

Instead, somehow, I kept going. I asked God to throw me a bone and make it easier. He did not. What he did do was open my eyes to the people who showed up along the way: teammates’ families and friends who brought food and massage sticks and Gatorade; kids who cheered us on and held out ice water; my own friends who waited patiently at the top of a hill I swore was designed to kill me and gave me an extra boost of love; and my boys, The Husband and The Kid and Little Brother, en route to McDonald’s, who pulled up beside us and grabbed my hand.

About an hour after that encounter, we crossed the finish line–the four of us, my team, together.

At the end of our first and only half-marathon together, TH turned to my excited face and announced, “That was terrible. I hated it.” I’ve always laughed at him for that, until now. Now I know how he felt. “Enjoy!” spectators cheered at us along the course as I wanted to vomit and die. I did not enjoy. But I didn’t want to be the weakest link (which I surely was). The pressure felt insurmountable, like the hills along our path. I surely would have quit were we not required to finish together.

What I’m saying is that I’m not a hero, but I am done. Blistered and sore and done, with a medal to my name and two boys who saw their mother make it across the finish line, and that is something. A lot of things, in fact. And our quartet stuck together, supporting each other, even when I seriously considered jumping from the Harbour Bridge.

A lovely friend of mine refers to her family, and mine, as “Team,” and not in the sickly sweet way that makes you want to gag, but in the “Hey, Team!” way when she and hers see us walking into school, or like, when I told her last week that I was going to lose it after being home with a sick kid for days on end, she commiserated that it can be tough having the team all together.

It can be. We know waaaaay too much about each other: how to push each other’s buttons, how each other’s farts smell. Togetherness can be exposing and hard, making us vulnerable and so seen–whether on a trek course or at home. It can be…chafing, physically and emotionally.

I took my yearly sojourn to a hotel by myself on Saturday, with my sore muscles and gaping wounds, and when I entered the blessed room I noticed how quiet it was. I lit a candle, popped the bottle of champagne TK had waiting on me (#grateful), and got to writing. It was glorious.

And annoyingly incomplete. So I texted friends. And FaceTimed my family. Apparently I can’t go eighteen hours without my teams.

“I’m so glad we get to be a family,” TK said on the way to school this morning, and it took my breath away. He is so aware–he and LB both–of being a member of this unit of four (five, when they count Google Home, which they often do; guess we don’t need a dog?), of their place in it: of being sons, and brothers. Of being part of a team.

A college friend used to joke that “there may not be an I in team, but there is an M and and E,” and it’s the me part of the team that I struggle with the most: my temper, my mistakes, my role. Along with making time for me so I don’t forget who I am, when I am so embedded in others. Others who both pull me out of myself and away from what I know of me into new places, paths that lead up hills and through forests and along spectrums and into classrooms and somehow end up making me more myself than I ever was. With the medals and chafing and heart to prove it.